Resources
The resources below were included to help connect wAIHA patients and caregivers to understanding communities, reliable information, and assist in finding support programs and services.
Janssen has no relationship with the organizations listed and is not responsible for the support they provide.
Study Overview
ENERGY is a clinical research study of an investigational medicine to see if it is safe and effective in treating people with warm autoimmune hemolytic anemia (wAIHA). The ENERGY study includes two parts: Double-Blind Period and Open-Label Extension.
Patient Support Organizations
| Name | About | Phone | Website |
|---|---|---|---|
| Autoimmune Association | The Autoimmune Association is the world’s leading nonprofit organization dedicated to autoimmune awareness, advocacy, education, and research. | (586) 776-3900 | autoimmune.org |
| EveryLife Foundation | Dedicated to empowering the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments, and cures. | (202) 697-7273 | everylifefoundation.org |
| Global Genes | A globally connected community equipped to eliminate the challenges of rare disease, united by a determination to support and provide what they need to take action and thrive. | (949) 248-7273 | globalgenes.org |
| National Organization for Rare Disorders (NORD) | A patient advocacy organization committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services. | (617) 249-7300 | rarediseases.org |
| wAIHA Warriors | The first and only community solely dedicated to supporting patients and caregivers affected by warm autoimmune hemolytic anemia. | (740) 360-5505 | waihawarriors.org |
wAIHA Information
| Name | About | Website |
|---|---|---|
| Genetic and Rare Diseases Information Center (GARD) | Access to current, reliable, and easy-to-understand information about wAIHA. | rarediseases.info.nih.gov |
| National Heart, Lung, and Blood Institute | Science-based, plain-language information about wAIHA. | nhlbi.nih.gov |
Clinical Trial Educational Videos
