wAIHA Community Blog

jackie waiha blog

An Unexpected wAIHA Diagnosis

Being diagnosed with any disease is a harrowing experience but being diagnosed with a rare disease with no cure and few treatment options is especially distressing, as wAIHA patient Jackie shares. “When I was diagnosed, I was told nothing other than you have it and kind of good luck. It wasn’t that cold, but it…

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sean waiha blog

Living with wAIHA

Warm autoimmune hemolytic anemia, or wAIHA, is a rare blood condition that impacts about 45,000 people in the U.S. While it doesn’t affect a large population, there’s no denying its significance in those who live with it, as ENERGY study participant Sean shares. “I went from one day being a completely healthy 45-year-old male to…

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karen jones waiha blog

Participating in Rare Clinical Trials

While rare diseases are categorized as such for a reason (they impact less than 200,000 people), more than 30 million Americans, or approximately 1 in 10, live with a rare disease. Those living with a rare disease and their loved ones know how scary, isolating, and physically and emotionally draining it can be – but…

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dave waiha blog

A Childhood Impacted by wAIHA

While warm autoimmune hemolytic anemia (wAIHA) is more common in adults, the condition doesn’t discriminate against children, as Dave, who lives with wAIHA shares. “I was diagnosed with wAIHA as a child. Initially, my doctor said I’d be in the hospital for two to three days. I ended up missing the last two years of…

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